Happy 5th Birthday Ferrial! 

 WFF and Colt Ford at 94.9 the Bull's Green Solo Cup

 We would like to thank Colt Ford and the team at Wild Bill's for giving us the opportunity to educate Colt Ford on TS Awareness and get a photo opp....

We all owe a huge thanks to Kristen Gates for making all of this a reality...


Interview with 99.5 


At long last!  The radio interview Mark Phillippe did with Lora from 99.5 in Greensboro, NC talking about Turner Syndrome and Walk for Ferrial.

www.995wmag.com/pages/loraandchris.html

MARK.mp3

What is Turner Syndrome?

Turner Syndrome (TS) is a chromosomal condition that exclusively affects girls and women. TS occurs when one of the two X chromosomes normally found in females is missing or incomplete. The syndrome is named after Dr. Henry Turner, who was among the first to describe the features in 1930s.

  • TS affects 1/ 2,500 live female births.
  • There are over 71,000 women and girls living with TS across the United States.
  • It is estimated that only about 1% of fetuses with only one X chromosome survive to term and that approximately 10% of all miscarriages are due to Turner syndrome.
  • Diagnosis of Turner syndrome is confirmed by a blood test called a karyotype, which analyzes the chromosomal composition of the individual.

 Are there common characteristics of Turner syndrome?  Click here to find the answer to this and more useful information about Turner Syndrome.

Find out more information under the Resources section and Publications at www.turnersyndrome.org

Please consider helping to support use by clicking the link below and donating to the Walk For Ferrial.......

The 2012 walk is behind us and a huge thanks to all that supported and showed up to the walk.  There was an amazing video created to capture the walk at https://vimeo.com/53920010 

 

Designate your United Way contributions to Turner Syndrome!

If you are a United Way contributor please consider designating your contributions to Turner Syndrome Society, #021953.

Thank you!

 Chipper Jones wears a WFF bracelet during his last home game!

While the results of the game weren't what we had hoped for, we are proud that Atlanta Brave Chipper Jones wears a Walk For Ferrial bracelet during the game!  Are you wearing your Walk for Ferrial bracelet?  

Thank you Chipper!

top photo from WSB-TV facebook page. 

February is Turner Syndrome Awareness Month

Mark Phillipe with Gov. Nathan Deal. February is Turner Syndrome Awareness month

February is now officially Turner Syndrome Awareness month in the state of Georgia.

February is now officially Turner Syndrome Awareness month in the state of Georgia by proclamation of the Governor! Mark Phillippe was presented a signed proclamation by Georgia Governor Nathan Deal to make February Turner Syndrome Awareness month recognized at the State Level and backed by the Governor's office.

Hi, I'm Ferrial! 

 

 Welcome to my 'Walk for Ferrial' website.  I am 4 years old and I was diagnosed with Turner Syndrome at 6 months of age. 

Walk for Ferrial was the idea of a 16 year old high school student who wanted to do something to raise awareness for Turner Syndrome. Each fall a fundraiser is held - Walk for Ferrial -  and proceeds are donated to Tuner Syndrome Society for research. 

I hope to see you in November at the next Walk for Ferrial.